Category: Electronic Rights

Your DNA, Please

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The Economist:

Rapid advances in genetic testing promise to transform medicine, but they may up-end the insurance business in the process
“IF YOU can make a good soufflé, you can sequence DNA.” That assertion sounds preposterous, but Hugh Rienhoff should know. When his daughter was born about three years ago, she suffered from a mysterious disability that stunted her muscle development. After many frustrated visits to specialists, Dr Rienhoff, a clinical geneticist and former venture capitalist, decided to sequence a specific part of her genome himself. He discovered that her condition, which most resembled a rare genetic disorder known as Beals’s syndrome, was probably due to a new genetic mutation. “Without a lab and for just a few hundred dollars, you can contract or outsource almost all the steps,” he explains.
What a well-connected and highly motivated scientist in California can do today the rest of the world will be able to do tomorrow. Indeed, a number of firms are already offering tests for specific ailments (or predispositions to ailments) directly to the public, cutting out the medical middle-man. Dr Rienhoff, for his part, will soon launch MyDaughtersDNA.org, a not-for-profit venture intended to help others to unravel the mysteries of their family’s genes in the way that he unravelled those of his own.

Who’s afraid of Google?

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The Economist:

RARELY if ever has a company risen so fast in so many ways as Google, the world’s most popular search engine. This is true by just about any measure: the growth in its market value and revenues; the number of people clicking in search of news, the nearest pizza parlour or a satellite image of their neighbour’s garden; the volume of its advertisers; or the number of its lawyers and lobbyists.
Such an ascent is enough to evoke concerns—both paranoid and justified. The list of constituencies that hate or fear Google grows by the week. Television networks, book publishers and newspaper owners feel that Google has grown by using their content without paying for it. Telecoms firms such as America’s AT&T and Verizon are miffed that Google prospers, in their eyes, by free-riding on the bandwidth that they provide; and it is about to bid against them in a forthcoming auction for radio spectrum. Many small firms hate Google because they relied on exploiting its search formulas to win prime positions in its rankings, but dropped to the internet’s equivalent of Hades after Google tweaked these algorithms.
And now come the politicians. Libertarians dislike Google’s deal with China’s censors. Conservatives moan about its uncensored videos. But the big new fear is to do with the privacy of its users. Google’s business model (see article) assumes that people will entrust it with ever more information about their lives, to be stored in the company’s “cloud” of remote computers. These data begin with the logs of a user’s searches (in effect, a record of his interests) and his responses to advertisements. Often they extend to the user’s e-mail, calendar, contacts, documents, spreadsheets, photos and videos. They could soon include even the user’s medical records and precise location (determined from his mobile phone).

Google News Hypocrisy: Walled Off Content

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Mike Arrington:

TechMeme founder Gabe Rivera makes an interesting observation on the Google News story all over the blogosphere today.

One thing that bugs me: they’re now hosting original news content, yet they prohibit other aggregators from crawling it (per robots.txt restrictions and TOS). Of course Google News relies on the openness of other organizations with original news content.

NH Rejects Real ID Law

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Marc Songini:

New Hampshire Gov. John Lynch last week signed into law a bill that forbids New Hampshire government agencies from complying with the controversial federal national identification act, or Real ID bill.

The New Hampshire Legislature had overwhelming passed the bill this past spring and handed it off to Lynch, who signed it on June 27.

“Real ID is intended to make us all safer, which I think we can all agree is a laudable goal,” said Lynch in a statement. “However, I strongly believe Real ID’s proposed haphazard implementation and onerous provisions would have the exact opposite effect. The federal government obviously did not think this burdensome system through and that is why we in New Hampshire are right to reject it.”

When Public Records are Too Public

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Jason Fry:

But then there’s another set of personal details that have made their way online, and these documents are much more worrisome. Property deeds, marriage and divorce records, court files, motor-vehicle information and tax documents are increasingly being digitized, and contain a wealth of information that few of us would want online: Social Security numbers, birth dates, maiden names and images of our signatures. Local governments have rushed to put those documents online for a decade or so, often without scrubbing them of such information. And that’s made them potentially fertile ground for busybodies, stalkers and identity thieves.
Betty “BJ” Ostergren, a 58-year-old from outside Richmond, Va., has made it her mission to alert people to the dangers of public records online. Ms. Ostergren is feisty bordering on ferocious: Her tactics include mailing letters to people alerting them that their personal information is online and posting copies of public documents (or links to them) displaying the personal information of circuit-court clerks and other politicians, including former House Majority Leader Tom DeLay and Florida Gov. Jeb Bush. (See her Web site, the Virginia Watchdog, here; this Washington Post profile of her is also a good read.)

AT&T: Sticking it to us Yet Again

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James Granelli:

AT&T Inc. has joined Hollywood studios and recording companies in trying to keep pirated films, music and other content off its network — the first major carrier of Internet traffic to do so.

The San Antonio-based company started working last week with studios and record companies to develop anti-piracy technology that would target the most frequent offenders, said James W. Cicconi, an AT&T senior vice president.

The nation’s largest telephone and Internet service provider also operates the biggest cross-country system for handling Internet traffic for its customers and those of other providers.

As AT&T has begun selling pay-television services, the company has realized that its interests are more closely aligned with Hollywood, Cicconi said in an interview Tuesday. The company’s top leaders recently decided to help Hollywood protect the digital copyrights to that content.

“We do recognize that a lot of our future business depends on exciting and interesting content,” he said.

But critics say the company is going to be fighting a losing battle and angering its own customers, and it should focus instead on developing incentives for users to pay for all the content they want.

AT&T’s complicity in domestic surveillance via an EFF lawsuit.
Duncan Riley offers up a name change: American Tracking & Takedown. David Weinberger notes that AT&T is going to “exit the internet”.
It is disappointing to see our local politicians carrying the water for AT&T.

Censorship ‘changes face of net’

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BBC:

Amnesty International has warned that the internet “could change beyond all recognition” unless action is taken against the erosion of online freedoms.
The warning comes ahead of a conference organised by Amnesty, where victims of repression will outline their plights.
The “virus of internet repression” has spread from a handful of countries to dozens of governments, said the group.
Amnesty accused companies such as Google, Microsoft and Yahoo of being complicit in the problem.

Amnesty’s 2007 report can be found here.

New software can identify you from your online habits

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Paul Marks:

F YOU thought you could protect your privacy on the web by lying about your personal details, think again. In online communities at least, entering fake details such as a bogus name or age may no longer prevent others from working out exactly who you are.
That is the spectre raised by new research conducted by Microsoft. The computing giant is developing software that could accurately guess your name, age, gender and potentially even your location, by analysing telltale patterns in your web browsing history. But experts say the idea is a clear threat to privacy – and may be illegal in some places.
Previous studies show there are strong correlations between the sites that people visit and their personal characteristics, says software engineer Jian Hu from Microsoft’s research lab in Beijing, China. For example, 74 per cent of women seek health and medical information online, while only 58 per cent of men do. And 34 per cent of women surf the internet for information about religion, whereas 25 per cent of men do the same.

Google, Dell and Spyware

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David Ulevitch:

This is a long post but it’s worth the read. In short, Google and Dell have teamed up to install some software on Dell computers that borders on being spyware. I say spyware because it’s hard to figure out what it is and is even harder to remove. It also breaks all kinds of OpenDNS functionality. At the end, I’ll tell you what we’re doing about it.
About a year ago Google and Dell announced a partnership to include the Google Toolbar on new Dell computers. At the same time, Google was trying to convince the Department of Justice that changing the default search engine in the (then) new IE7 was too difficult (when in reality it’s really simple). Installing the toolbar meant that users would have Google as their default search engine in IE7. It also meant that Dell and Google would share some of the revenue from the advertising clicks that resulted from these installations, much like The Mozilla Foundation does with its Firefox browser.
Dell and Google are now installing a second program on computers that intercepts all sorts of queries that the browser would normally try to resolve. This program has no clear name and is very hard to uninstall. In some circles, people would call this spyware.